The bulbar muscles are one of the primary targets of ALS, which involves the mouth and throat. As such, the gradual weakening of the throat and mouth muscles may be experienced, which may result in difficulty swallowing or speech problems. Patients who are suffering from these symptoms (and their caretakers) may consult this guide on how to best deal with the challenges as mentioned above.
A Person With ALS Will Have Speech Difficulties
ALS can wreak havoc to a person’s speech capabilities and may need extra effort on both sides to have a better conversation. In the meantime, some things can be done to ease through this difficulty.
Write down the keyword for the conversation, preferably a single keyword. In doing so, the listener has a better gist of the general idea of what you’ll say.
Some can pretend to understand everything you said. If you suspect so, you can make them repeat what you said, to ensure that they did understand.
Over time, speaking will become more of a challenge, due to how ALS is progressive. As such, some record their voices, accumulating a library of recorded words, so that when the time comes they can’t finally speak, there can be a way of communicating with their voice, instead of relying on computer voice.
To The Listener
Give the speaker your full attention. Unnecessary noises should be silenced, and focus should be solely on the speaker, to spot for nonverbal cues.
Check if your hearing is in shape. If not, a hearing aid or amplifier is recommended.
If you didn’t understand fully what they said, it is perfectly fine to ask the person to repeat what was said. It would of help if you do remember some of what was said. But do not remember everything.
Practice, practice, practice. Speaking more with the affected person regularly can make you better understand the patient’s patterns. With much practice, you can even understand the patient better than an average stranger.
To an average person, swallowing may be a simple process. Several body parts are involved in this, such as the tongue, mouth, jaw, and the throat. Having ALS complicates it, and either food or liquid may go down the wrong pipe, which can result in choking, among other things.
People with ALS may try these simple tips when eating:
When dealing with dry food, immersing it in a sauce such as gravy may help with the flow of the pieces of food. Taking a sip may also help matters.
Foods that are both solid and liquid are not recommended, such as soups with food pieces inside. Substitute instead of things such as oatmeal or thick cream soups.
However, due to the nature of ALS, eating, and drinking may soon prove to be impossible. To this end, feeding tubes can be availed so that the patient doesn’t miss out on their nutrition.